BEGIN:VCALENDAR
PRODID:-//github.com/ical-org/ical.net//NONSGML ical.net 4.0//EN
VERSION:2.0
BEGIN:VTIMEZONE
TZID:America/New_York
X-LIC-LOCATION:America/New_York
BEGIN:STANDARD
DTSTART:20241103T020000
RRULE:FREQ=YEARLY;BYDAY=1SU;BYMONTH=11
TZNAME:EST
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
END:STANDARD
BEGIN:DAYLIGHT
DTSTART:20250309T020000
RRULE:FREQ=YEARLY;BYDAY=2SU;BYMONTH=3
TZNAME:EDT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
END:DAYLIGHT
END:VTIMEZONE
BEGIN:VEVENT
DESCRIPTION:Program: Community Health Planning and Policy Development Sess
 ion: Inclusion and Impact: Addressing Disability in Public Health Present
 er: Maame-Owusua Boateng Authors: Ashley Nurse\, Christina Pantzer\, Asia
  Beason\, Omar Guerrero\, Avery DeWitt\, Ikra Ahmad\, Joan K. Monin\, Che
 lsey R. Carter Abstract The ALS Association aims to make ALS a livable di
 sease by 2030. However\, existing ALS literature overlooks the role ablei
 sm plays in shaping “livability” and integrating a disability justice per
 spective. Given the complex level of need for many people living with ALS
  (pALS)\, intersectionality disability frameworks could be utilized to in
 form future health interventions and improve pALS and caregivers' quality
  of life. This presentation will use a disability justice framework to ex
 plore how ableism consciously and unconsciously shapes pALS and caregiver
  experiences. The Care Interactions in ALS Project is a mixed-methods stu
 dy exploring care experiences and interactions among pALS and their careg
 ivers. 151 participant surveys were analyzed using SPSS\, measuring self-
 reported patient ALS disability levels (ROADS)\, mental health (SF-20)\, 
 ways of coping (COPE)\, and caregiver support provision and associated st
 ress (Activities of Daily Living and Instrumental Activities of Daily Liv
 ing) scales. Using inductive thematic analysis\, 43 interviews were analy
 zed to identify ableist beliefs. pALS report varying levels of ability\, 
 caregiver support and associated stress. Additionally\, both pALS and car
 egivers report mental and emotional distress related to ALS. Several inte
 rview themes emerged highlighting pALS and caregivers’ emotional experien
 ce of navigating stigma\, accessibility issues\, and dismissive attitudes
  in healthcare and social spaces. Findings highlight the importance of us
 ing a disability justice framework to fully understand the lived experien
 ces of pALS and caregivers. ALS research requires disability frameworks t
 o inform equitable public health policies that better serve the challenge
 s faced by pALS and caregivers\, advancing the goal of making ALS a livab
 le disease.\n\nSpeakers:\nMaame-Owusua Boateng\; Ashley Nurse\; Christina
  Pantzer\; Asia Beason\; Omar Guerrero\;  Avery DeWitt\; Ikra Ahmad\; Joa
 n Monin\; Chelsey Carter\n\nAdmission:\nRegistrationFees: APHA Event Regi
 stration is Required\n\nDetails URL:\nhttps://medicine.yale.edu/event/a-d
 isability-justice-lens-in-als-research/\n
DTEND;TZID=America/New_York:20251105T084500
DTSTAMP:20260515T001656Z
DTSTART;TZID=America/New_York:20251105T083000
GEO:38.903500;-77.022987
LOCATION:801 Allen Y Lew Pl NW\, Washington\, DC\, United States
SEQUENCE:0
STATUS:Confirmed
SUMMARY:5012.0 - A Disability Justice Lens in ALS Research: Understanding 
 the Experiences of People Living with ALS and Their Caregivers
UID:3d9712eb-724d-44ea-8394-8bfbae40aa54
END:VEVENT
END:VCALENDAR